By Charl Rae Cobb

 

Denial, anger, rationalization, bargaining, depression, anxiety, and eventual acceptance. In nursing school, I learned that everyone goes through several stages during the grieving process. I was taught to help support people whose loved ones have died. What I now recognize is that every diagnosis, whether it is medical or not, brings out these emotions. Realizing it is a natural, and unfortunately, a necessary process helps our family deal with each new health challenge.

 

Whether we are dealing with the symptoms of an acute illness like a virus or an allergic reaction, a long-term condition such as an auto-immune disorder or cancer, or an unexpected change in medication, illnesses wind up disrupting our current and carefully planned academic and household schedule. Honestly, it can be upsetting, overwhelming, and confusing until I remind myself that teaching my child how to handle change is as important as teaching math and writing skills.

 

Some days I want to cry because of the unfairness and disappointment of a new medical diagnosis or medicine that we now have to deal with. At times, I am anxious or fearful that the academics will slide. Sometimes I feel emotionally and or physically exhausted. Some days I want someone else to take over the multiple roles I am responsible for in our home: teacher, cook, laundress, chauffeur, social coordinator, cheerleader, budget balancer, time manager, etc. Just so that I can be the mom and/or nurse that my child needs or I can just focus on my own health needs or those of another family member.

 

After I allow myself some private time to identify that as part of the grieving process, I find myself better prepared to move myself and my student who studies and learns from everything I do as well as say into the acceptance stage of the grieving process where we can empower ourselves with education and a can do attitude. This has become our “Step Number One“.

 

Step Two, is a chance to reassess our priorities. We like the analogy of filling a glass jar with large rocks, small rocks, sand, and water. No one can be successful in filling the jar with all the items if they try to put all the small things in first. Anyone can be successful if they put the largest rocks in, then the smaller rocks, then the sand followed by the water. Our family finds success and satisfaction when we prioritize our needs and our wants. This becomes an important life lesson that translates into financial budgeting and time management as well as health and academics. We also find this to be a powerful opportunity to teach discernment. If our child learns a healthy decision-making process so that he can continue to do so independently as an adult, then we have invested our time in a worthwhile endeavor rather than wasting it with worry.

 

Step Three is based on Step Two. If one or more of our family members need to focus on sleep, bedrest and antibiotics or other treatments to recover from a short-term illness, that becomes the priority and other things can wait. We may choose to progress slowly toward reading literature, watching documentaries, or playing games prior to resuming academics. It has been helpful to record what we did in our lesson planner retrospectively during these times. We have been pleased to see that we actually have satisfying discussions about a story we read together or a documentary we watched and were inspired to explore more about that particular topic or interest. When social distancing is due to illness, it has been helpful to maintain connections with others via FaceTime, phone calls, texting, and letter writing. It has amazed me at how much my child and his pen pals are lengthy and detailed letters to each other as well as watching their handwriting, typing, and spelling skills improve!

 

If I am the one who is ill, my child may proceed with lessons he feels more confident about. He may give me a short progress report each day or ask his dad or grandmother to help him work through a question if he did not find understanding by searching the Internet or textbook. If we are dealing with a long term health challenge or a newly diagnosed learning disability related to an illness, we tend to approach it as a health related unit study and learn what we can about the symptoms, treatment or therapy, etc. Therefore we can plan for success with physical health, social interactions, and schoolwork. Occasionally, this has led to combining nutrition and cooking lessons with biology, physics, and physiology in fun and memorable ways!

  

Every family goes through health challenges in their own unique ways. I hope that sharing our perspective might encourage someone else, as I have been encouraged by other parents who are homeschooling through medical challenges.

 

Charl’s work experiences include writing, education, healthcare, and art. She loves helping homeschoolers learn how to identify dominant learning styles and how to plan strategies for success. Respecting the individual requirements of her multi-generational household, she strives to create tasty, family-friendly meals while juggling multiple dietary requirements, provide social and educational activities that encourage those dealing with multiple special needs, and balance life in general. 

 

 

 

 

 


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Sarah Collins, SPED Homeschool Partner Collins Academy Therapy

 

Homeschool families are not exempt from grief. In July, we lost my husband’s grandfather. He passed away after a long life and a very short battle with pancreatic cancer. We were fortunate he lived his last seven weeks in our home. We quickly moved him and his wife of 72 years out of their assisted living home when the COVID-19 pandemic started. When they came to live with us, we worried they were exposed to COVID, but that worry quickly passed, and then he was diagnosed with cancer. Can you imagine the fear, then love, then happiness, then uncertainty, then joy, then sadness that my children felt? As a result, I drew on my background as an Occupational Therapist and am grateful for our choice to homeschool so that we can teach to the heart during our homeschool day.

 

The American Occupational Therapy Association provides a list of recommendations for Occupational Therapists to implement when treating those dealing with grief. Here are four ways to adapt those recommendations to your homeschool:

#1 – Help children get back to regular routines because they have an organizing effect and encourage feelings of well being. Of course, some time off is necessary. However, this works well with our overall philosophy of rhythm vs. routine. We can get back to a rhythm in our day, like morning time together, books at lunch, afternoons outdoors, very quickly.

#2 – Encourage participation in enjoyable but low-stress activities with close friends to minimize feelings of isolation. Being connected with other homeschool families allows kids to divert attention to more pleasurable activities with friends and also gives them a support system to process their emotions.

#3 – Provide creative activities such as art projects and journaling to foster self-expression, which can help with processing strong feelings. Drawing, painting, craftwork, scrapbooking, making memory boards with photographs, and collages naturally lend to meeting the needs of the grieving child (Milliken, Goodman, & Bazyk, 2007). My 11 year old made a photo montage of our time during what we lovingly call the “Collins COVID Cancer Chronicles”. We also spent time reading many picture books to help give a language to grief. Our favorites are The Invisible String, Lifetimes, Badger’s Parting Gifts, and Ida Always.

#4 – Provide activities to do in remembrance of your loved one. What hobbies did they enjoy? Or what memories do you cherish of your time together? Baking cookies, wood-burning, flower arranging, scrapbooking, drawing, and painting were some of the occupations that we have done to help memorialize Pappy and keep our hands busy.

 

Grief is difficult because it is manifested differently in every person. Even though homeschool families are not exempt from loss and grief, we have the advantage of completing meaningful occupations together as a family/ homeschool and within a community.

 

Looking for more encouragement for homeschooling during a tough season? Check out this recent SPED Homeschool mom encouragement blog round-up.

 

 

 

 

 


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