by Cheryl Swope, Simply Classical Curriculum and Cheryl Swope Consulting

 

David was small in stature. He had only five small stones. By any standard of measure, David stood no chance against Goliath; but the LORD was with David.

 

This is what I wish I would have understood when my twins were young. As an adoptive mother, I fretted. My son’s legs were twisted and his muscle tone floppy. He spoke with sounds that were difficult to understand. He seemed perplexed by reasonable rules. Unusually passive, he was willing to let his twin sister attempt to button his clothing, do his simple chores, and speak for him in public. She, by contrast, was eager to help, but lacked the skills to do so. With odd language and fine-motor skills so weak they fell into the 2nd%ile. Even at age four, her drawing and coloring appeared at a toddler age. What was I to do?

 

My mind vacillated by its own weakness. On hearty days, I vowed to “catch them up” with heroic amounts of attention, therapies, and hard work. Much of the time, this mindset served my children well. We truly worked hard. The therapeutic work structured our days, nurtured our bonds, and resulted in measurable, albeit small, gains. On weaker days, I despaired of ever being able to catch them up to their peers. Just when I thought we had made great strides, a same-age child would come over to play. I marveled at the organized mind of the child as she planned her play, folded a swim towel, or spoke with coherence. I felt myself tumbling into the chasm of difference between my children and the capable neighbor child.

 

Where was my mistake? I believe now that my mistake, on both the hearty days and the weaker days, was thinking that my role was to “catch up” my children, as if the differences were merely quantitative and resolvable. My little David–my twins Michael and Michelle–would never be the size of Goliath, the physically and mentally able “giants” among other children we knew. They would not run and play freely like the others, navigate friendships or draw and color like the others, speak or plan or achieve like the others. But the LORD was with them. 

 

I began to understand that the enemy was not the other children. They were not “Goliath;” rather my giant was the temptation to hold up other children as the measuring stick for my own. I had nothing in my satchel to slay this temptation. But the LORD was with me. I want to share this excerpt from I Samuel 17:

 

Then he chose for himself five smooth stones from the brook, and put them in a shepherd’s bag in a pouch which he had, and his sling was in his hand. And he drew near to the Philistine….

Then David said to the Philistine, ‘You come to me with a sword, with a spear, and with a javelin. But I come to you in the name of the Lord of hosts…. This day the LORD will deliver you into my hand, and I will strike you and take your head from you.’

 

Slaying the temptation was my first, small step of progress, and one that would need to be taken. One of my children’s occupational therapists told me that the top factor for a child’s success was his sense of love, acceptance, and closeness from his mother. As if scales fell from my eyes, I compared less and, instead, saw my children as the unique, fully human, endearing children that they are. Scrapbooking helped. I jotted down the delightful things they said, the small steps of progress they made, and the ways in which they evidenced growth beyond what is measurable: thoughtfulness, gentleness, kindness, helpfulness, self-control. 

 

Our children are created imago Dei, in the image of God, redeemed by Christ, and sanctified by the Holy Spirit. In Him, my twins have an unmatched advocate, defender, and sustainer. With this comfort I am free to continue therapies, press on with academics, and teach the many things they need to know. We can work on exercises, speech articulation, social understanding, and manners. If we move forward in spelling, math, writing, and reading, we rejoice. Today as we watch other families make progress step by step through our Simply Classical Spelling: Step-by-Step Words and  Simply Classical Writing: Step-by-Step Sentences, we rejoice greatly. But most importantly, we have learned the hard way that even if we make no progress despite great effort or, due to degenerative conditions, experience regress, the LORD is still with us.

 

We can remember that young David who once carried only five small stones later prayed words we can say together with our children in great confidence: I will fear no evil, for You are with me. We can trust in His faithfulness toward us no matter where our children fall today on percentile rank, stanine, and other manmade measures. The LORD provides us with comfort and understanding as we love our children on hearty days and weaker days.

 

Resting in Him, we can rejoice in our children’s small steps. We can rejoice most of all in sharing the truth that closes David’s beloved psalm for ourselves and for our children: Surely goodness and mercy shall follow me all the days of my life; and I will dwell in the house of the LORD forever. Let us guard this comfort closely and teach this, above all else, to our children day by day.

 

 

 

 

 


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by Michele Nuckolls, SPED Homeschool Community Member

 

During a hard season, I was reading a book and had a God-ordained moment of clarity. I went to my daughter’s room and asked her, “Do you think about your birth mother every day?” She gave me an astonished, “YES!” The look on her face said, “How could you possibly have guessed?” 

 

After praying for answers, I read a book by adoptee Sherrie Eldridge who is gentle with adoptive moms like me who didn’t know. Since that day, my daughter and I have embarked on a journey of adoption grief together and it has been healing for both of us.  

 

“Chasing the why behind the behavior” is a phrase coined by Dr. Daniel J. Siegel M.D. and Dr. Tina Payne Bryson, Ph.D. This dynamic duo has written quite a few books together, including No Drama Discipline where they specifically talk about this parenting tool. When I thought about how I have simplified my homeschool, this was the first thing that came to mind. When I “chase the why,” sometimes the answer changes everything.  

 

If you are a seasoned SPED homeschool mom, you have probably already been chasing the why behind the behavior when your child might just not be developmentally ready for what you are asking him to do. We have learned to “lower the bar,” so that our kids can meet expectations and feel success. 

 

Here are a few of those examples:

My child melts down every Sunday morning while getting ready for church.

  • Why? Perhaps, church is too loud and chaotic and my child is overwhelmed by it all.

My child protests and doesn’t like to read aloud.

  • Why? Perhaps the book is too difficult to follow. I have one child who struggles with following any type of fantasy book, but real-life books like Ramona and Beezus or Junie B. Jones are loved. As an aside, I have two kids who struggle with emotional regulation and they both LOVE Junie B. Jones. I think it’s nice to read about another cool kid who isn’t perfect either.

My child refuses to write.

  • Why? Low muscle tone? Poor hand, eye coordination? Perhaps a weighted pencil, a marker, or a pencil grip can help?   

My child refuses to go to speech therapy.

  • Why? Because last time he went, he had a meltdown and is now embarrassed to go back. He needs to talk through that embarrassment.  

My child doesn’t want to play at the park in the summer.

  • Why? Because feeling overheated puts him into sensory overload.  

 

Then, there are the deeper struggles. Perhaps a child is disrupting the family rhythm so much that things are harder than they should be, or could be. Here are a few deeper examples:

 

My child is struggling with a math problem and when I ask a simple question, what is 2+2, he intentionally gives an incorrect answer of 500.

  • Why? He is embarrassed that he doesn’t understand, and he decides to act like he doesn’t know anything. He needs a break (maybe until tomorrow), and he needs to watch some more examples worked out for him to watch. He needs to hear that I know he is smart and it’s okay to need extra time to learn. If my child is adopted, he may be afraid of being abandoned, even if I took him home on the day of his birth. If this is the case, maybe he needs to hear that he is my son forever, even after he is old like grandpa. He needs to know that this math thing is just not that important.     

My child is very angry and frustrated today. He is roughly setting the table with snappy remarks.

  • Why? Some children were making fun of him on the playground this afternoon, and he needs to be able to tell the story and talk it out with a parent. He needs me to hear and understand how he feels about it. As Dr. Siegel would say, “he needs to feel felt.”

My tween suddenly does not want to complete his work this school year and seems angry or sad. 

  • This year is the first year of mostly independent work. He feels neglected and misses me. I need to carve out some read-aloud time together, one-on-one time to work on school together, or just special time together, even if it’s just ten minutes a day.

My child is speaking harshly to his brother.

  • Oh no, that was a direct quote FROM ME!  

 

I think our kids with special needs or unique, difficult histories (like adoption, divorce, or illness) have heard and possibly internalized a lie that is troubling them. This is when we, as parents, need to pray and seek the Lord, asking him to reveal the truth. Don’t be afraid to sit in silent stillness with your child to give them a gentle space to share when they are ready. It’s okay to ask questions or make suggestions, but then try to stop talking. Sometimes I will sit down with a child and say something like, “I think something is bothering you, and I hope you will share it with me,” or, “I noticed you were loudly washing the dishes tonight. Could you tell me about what is on your mind?”  

SPED Homeschool has additional articles and resources that address the unique situation for adoptive and foster families.

 

 

 


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Peggy Ployhar

 

Last year while I was speaking at a homeschool conference I off-handedly mentioned that I was the oldest of 14 and had 10 adopted siblings, something I occasionally mention, but after feeling a nudge from the Holy Spirit, I went with it.

After wrapping up my session I joined one of my session’s breakout discussion groups. Without knowing it, the group I joined had an adoptive mom. As we chatted in this group, this mom asked me, “What is the most difficult part of being an adoptive sibling?”  Now you must understand, I don’t have the experience of having lived at home with my adopted siblings because they entered into our family after I was living on my own, but this doesn’t mean I haven’t wrestled with various aspects of being an adoptive sibling and the impact it has made on my extended family.  In response, I told her about my greatest struggle, watching my mother’s health decline as she took care of all my adopted siblings yet did not prioritize self-care. In fact, it was not until my mother had a heart attack a few years ago that she even took this matter seriously.

After I responded, this woman looked at me with a rather concerned face and then told me this was the same issue she and her oldest biological daughter argued about most.

 

“…keep persisting and showing her how much you love her and her family by not giving up or letting her play down her need to be loved and cared for just as much as the children she pours her life into each and every day.

 

Later on that day I was able to talk with this woman’s daughter and encourage her to help her mother find ways to take care of herself. I also reassured her that it was not selfish or ungodly for her to want her mom to stay as healthy as possible while taking care of her siblings.

 

From this perspective (and having been a foster mom myself for three toddlers for 13 months), I would like to share with you a few friendly ways to help the adoptive moms around you care for themselves, so in turn, they can be as healthy as possible to take care of the orphans God has brought into their homes.

  1. Stop by to drop off a special treat or gift, but be ready and willing to stay to visit or help in any way needed.
  2. Write a note of encouragement and be specific. Tell your friend what you have observed that she is doing and how it is making an impact.
  3. Bring over a dinner that can either be easily heated and served or quickly and conveniently frozen for future use. Flexibility, as well as keeping the dietary needs of the whole family in consideration, means your meal won’t go to waste.
  4. Offer to help watch the kids. One caveat on this suggestion is that oftentimes foster children can only be watched by “approved” caregivers. If this is the case, and you still want to help, it is often okay for an individual to watch the children while the foster parents are on the property. So, let mom take a nap, do something she enjoys by herself in another room, or give mom and dad a date night in the dining room while you watch a movie and play games with the kids in another area of the house.
  5. Plan a weekend away for your friend by enlisting the help of her spouse or another caregiver who can take her place while she is gone. Don’t spill the beans until everything is planned, that way she can’t make an excuse for not getting away. Then enjoy treating your friend to some girl time.
  6. Be available to talk, but mostly be available to listen.  You may not even know how to respond to the many situations your friend is going through, but your willingness to listen and speak truth and hope into her life as the Spirit leads will be greatly appreciated
  7. Take on the role of an accountability partner by asking your friend what goals she has and how you can be instrumental in helping her achieve them.  For instance, maybe she has a fitness goal and going for a walk every evening together will help her get more exercise. If you don’t live close then consider how the two of you can connect on the phone or for a video chat regularly to catch up as well check-in.
  8. Be on call and go as far as making a reminder card your friend can put somewhere that will always remind her you are just a phone call away for anything she may need.
  9. Be transparent about your own failings.  Parenting foster and adopted children reveal huge gaps in our own lives and relationships.  The more you are willing to share your shortcomings with your friend, the more she will feel safe to do the same with you.
  10. Pray for your friend, her family, and her children. God does amazing things when we pray.

 

In the fall of 2017, I followed my own advice for #5 and planned a girl’s getaway trip to New York City. Before I even told my mom that I was going to kidnap her for 3 days to take her to NYC with me and my daughter, I made sure my dad was able to get the help he needed while she was gone, bought the airline tickets, booked our hotel, bought tickets to a Broadway show, and even planned a horse-drawn carriage ride through Central Park.  I knew if I had told my mom ahead of time she didn’t need to get away and she especially would have told me not to go out of my way to plan anything extravagant. But, I wanted to spoil my mom for a few days so I made my plans before she could change them. Our three days in New York City were magical and she, my daughter and me created memories we will never forget.

You too may experience some resistance from your friend as you find ways to help her remember to take time for herself, but I want to encourage you to keep persisting and showing her how much you love her and her family by not giving up or letting her play down her need to be loved and cared for just as much as the children she pours her life into each and every day.

 

 

 

 


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Shannon Ramiro

Recently I had the privilege of interviewing a friend of mine, Karrie Cannell, about her international special needs adoptions. I hope you enjoy her story as well as the insight she has to share with other families who may be thinking of adopting a child with a disability from another country.

 

What led your family to do an international adoption?

One morning I was online and came across a little boy’s picture that was listed for adoption. I had never thought about adoption, we had 8 children, so it wasn’t even on my mind. I kept going back to his picture. He had the same skin condition, epidermolysis bullosa (EB for short) as my stepdaughter. I knew I could care for him. I talked to my husband and we talked to our kids, and we all prayed about it. The next thing we knew, we were knee-deep in adoption paperwork.

About halfway through the adoption process, we found out the boy we were looking to adopt had a biological brother with the same skin condition. They had been separated 3 years before. We immediately decided to adopt both boys. About 7 years later we adopted again, and it happened about the same way. Someone knew we had kids with EB and shared a little girl’s picture with me. At first, I was just advocating for her family to come forward. Little did I know I was going to be her momma.

 

Were there language barriers before, during and after the adoption? How did you navigate them?

We didn’t speak Ukrainian and the boys didn’t speak English. We used Google translate at first, but once they were immersed in the English language they picked it up very fast.

With our daughter, we didn’t use Google translate. She was adopted at a much younger age than the boys. Since she was only 3, we just pointed to things and slowly repeated ourselves, speaking to her in English. She picked up English even quicker than the boys did. Looking back, I can see some frustrations when they couldn’t understand or tell us what their needs were, but we didn’t quit. Honestly, it wasn’t terribly hard.

 

What has been the most enjoyable part of being a foster/adoptive family?

It’s different with each child. The boys have significant delays caused by the lack of care from their biological mother and the orphanage. Getting them home and giving them better care all around is my greatest joy. Seeing them enjoy life and experience things for the first time is also a great joy.

For our daughter, she also lived in an orphanage but doesn’t have the mental delays like the boys. She was very young when she came home, so the transition was easier and she was happier. Her joy is infectious and she loves being in our family.

 

I can see some frustrations when they couldn’t understand or tell us what their needs were, but we didn’t quit.”

 

What was the most challenging part of your international adoption?

The biggest challenge was probably getting the boys the mental help they need. Finding someone who specializes in Reactive Attachment Disorder (RAD) and Fetal Alcohol Syndrome (FAS) and truly knowing how to help us was our biggest issue, and still is. It’s been a tough road with the boys, a journey I never knew I needed to be on, but I am so blessed to be where I am at with them.

 

What specific learning challenges have you encountered with your foster/adopted child(ren)? What resources have you found the most helpful in these situations? 

Mental health resources have been our biggest challenge. As the boys get older we have found what works for them and what doesn’t. 

 

What advice do you have for families who are thinking about looking into an international adoption?

I wish we were more informed, educated, and better equipped to help the boys with their mental health issues. There needs to be more resources to help families that are struggling. More respite. More knowledge. More information when you feel alone and lost and feel like you have nowhere to turn.

 

 

 


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Ashly Barta

Have you ever felt the longing to add to your family? The thought of adding to your family either by birth, adoption, or fostering can be an important life decision, adding military life into that equation can make it a bit more difficult to navigate.   Military life has its advantages and disadvantages; deployments, frequent moves, financial strain, and little to no family support.

I recently visited with a friend that went through the adoption process while she and her husband were stationed overseas.  Not all adoption agencies are willing to work with couples that are not currently residing in the country so make sure to do your research.  My friends were able to use a social worker local to them in Germany who then worked closely with the adoption agency in the United States to bring about their adoption. 

The adoption process for them was long and hard at times. It consisted of a lot of paperwork and many hoops they had to go through to show they would be good parents.

When I asked my friend what she would want everyone to know about the adoption process, she said, “I would want people to understand that there is a lot of heartache and loss in adoption. The ache of couples just wanting to be a family, the heartbreak of the mother having to make this choice and eventually our little people will have that heartache and loss.” In the end, the gift is so worth it.  Your child is a gift, your love and respect for the birth mother is a gift, and the knowledge gained from the experience is God’s gift.

My friend also spoke to me about the titles they have chosen to use in their adopted family.  We call our guy’s mom, his tummy mommy but as he grows older that may change. She is his mom. She created him and chose to give him life.  We are his mom and dad, we are all he has ever known. So in their house, they have mom, dad, and tummy mom.

Your child is a gift, your love and respect for the birth mother is a gift, and the knowledge gained from the experience is God’s gift.

For those wanting to adopt I would suggest looking into all the possible ways you can adopt before deciding on a specific path. Foster to adopt, infant adopting, as well as international adoptions are each unique and not one is right for every family that feels called to adopt. Learn and understand the processes of each before jumping in. Start saving now if you plan to do an infant or international adoption. Look into grants, hold fundraisers, have yard sales, every little penny helps.

Also, make sure to find an agency that truly cares for the expectant mother’s well being. Understand that it can take tens of thousands of dollars to complete an adoption from beginning to end, and in infant adoption, the expectant mother may choose to parent after you’ve been matched and are attached to the idea of this baby being your child.

My friend ended our conversation by stating, “Do not let PCS dates, fear of moving, or fear of deployments stop you from pursuing adoption and/or foster care.  Just as everything else that comes with military life, don’t put things off until you have a better schedule, better job, better location, just let your heart speak for you.”  I have to agree. One call is from higher up the chain of command and He will always work things out for the best.

 

 

 

 

 


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Dawn Spence

I had the privilege of interviewing the Northcutt family and want to share their beautiful adoption story with you.

 

What opened your heart to adoption?

My husband worked in the social work field and we had friends that worked in the field too. Too many times my husband, his co-workers, or friends had to sleep in their offices with foster kids because there were no foster homes to take them in.

When my husband took another job, after 13 years in the field, I said we are going to foster because now I can do something about it. We said we would take one of each (we have 2 bio kids one of each) but were licensed for 6 total (state’s limit for our space). The first call we got was for part of a sibling group of 6, they needed 4 beds. I didn’t have the heart split them up, so we accepted them into our home and that was the start of our adventure. We were parents of little ones again.

This last year we completed our first adoption. Our son came as a very tiny and sick NICU baby that we brought home when he was 3 days old. I walked into his hospital room and the nurse looked at me and called me mom. That was weird and very unexpected. I asked to hold him and as I held him the nurse stood there and said: “Well mom he needs a name”. I looked at my husband and we knew this baby would be ours forever. How did I know this? I don’t know, it was just a God thing.

We have fostered for just over 2 years now and 29 beautiful babies have walked into our hearts. We have adopted 1 and this year will probably adopt 2 to 4 more. Why adopt them all? Because God commands us to take care of the orphans and this is our homeschool family’s adoption journey. We have been called to love these children. 

 

How did adoption change your homeschooling life?

We homeschooled our 2 biological kids. I graduated one at the age of 16 and she is now a senior at SHSU, at the age of 19. We have another in high school who still lives at home. Our homeschool day looks nothing like public school. We have 5 toddlers/babies right now who are all under age 3. My son gets an education that no curriculum could ever provide because of our home environment. I am a school teacher at heart and we did a lot of table learning when he was younger, but it is very different now.

I look forward to starting the homeschooling journey all over again with my littles because I learned so much when we homeschooled our older kids. Like the things I wish we could have done differently as well as things that were just perfect that I look forward to repeating.

My older kids will be better parents and more compassionate after being part of raising these littles. They have more life skills than any curriculum could teach. Both of our kids tell us they are thankful we opened up our home to love other children because it showed them so much about how to really love. We know we can’t save the world, but we can make the world look a little better for at least one child as we love them.

I don’t sit and teach my son anymore, but mostly that is because he is in high school and his lessons are self-paced. I give the bones of what he needs to do to him and then he finds the time to get his schoolwork done. Sometimes getting his schoolwork done is very hard because of everything that goes on in our home with fostering and raising babies. We are on the go a lot so he does school in the car, sometimes while holding or feeding a baby, or while watching the babies play. I help him when he needs it but my son is very self-driven so that doesn’t happen often.

 

Both of our kids tell us they are thankful we opened up our home to love other children because it showed them so much about how to really love.

 

What is the best part of adoption for you?

I can’t pick just one thing, so here are two:

1) Getting to enjoy my newly adopted son while he grows, laughs, learns, and is healthy. He is 17-months old, he is not sick anymore, he is absolutely spoiled, and I am beyond blessed that he calls me Mom.

2) Getting to watch my big ones love on these babies with Christ’s love.

 

What is one piece of advice that you would give to someone that is thinking about adoption?

If you are thinking about adoption then just do it. Don’t wait. The timing is never perfect in our eyes. You will never be financially stable enough, have enough room in your home, or any other excuse you can come up with. If we don’t step in and do our part, who will?

We adopted our son as an infant but we did that because God sent him to us as an infant. This year we hope to finalize an adoption for a sibling group of two girls ages 2 and 7. We will possibly adopt another sibling group of two special needs boys if they cannot return home.

All of our kiddos have some major trauma in their pasts which in itself causes a lot of special needs. My biological kids are Neurotypical so I am by no means qualified to parent a special needs child, but who is ever qualified to parent right out the door? You learn as you go, and you just figure it out.

Don’t be afraid of adopting because you are not sure you can handle a child’s needs. We are moms and dads and God has equipped us for whatever He calls us to do.

As my husband says, “Don’t think about the what if’s. Think about who, and how that ‘who’ needs you right now.”

 

 

 

 

 


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Peggy Ployhar

I had the privilege this month of interviewing my parents, Joe and Margie Prenosil, who have been special needs adoptive parents for 30 years! I hope you enjoy the insight and wisdom they have to share from their many years of experience as they have loved and cared for my siblings.

 

How long have you been parents? How long have you been adoptive parents? Was it always your intention to adopt?

We have been parents for almost 50 years, and adoptive parents for 30 years. As far as our intention to adopt, after 4 years of providing foster care, it was something we started to consider. At that point in our foster care services, a baby came into our care who no one wanted to adopt because of the complications he had with severe cerebral palsy. We decided to adopt him and thus Nicholas became our first adopted child.

 

Because you have specifically adopted children with special needs, what challenges/obstacles did you face early on? And, what resources did you find the most helpful for navigating them?

Our challenges started with finding what resources were available to us from our county and state as well as various specialized clinics. The first thing we found helpful was to expand our foster care work to also include our county. This step greatly increased our learning curve regarding what resources and connections were available locally that were most beneficial for each obstacle that came our way. 

The first obstacle we had was learning all the medical information needed to treat and comfort the children we cared for. It was a medical education that took many years for us to feel like we knew what we were talking about regarding various medicines and adaptive equipment.

Our second obstacle was identifying where to acquire handicap equipment and transportation. The most useful resources we discovered while working with individuals who helped foster parents in our county.

One final obstacle, but one that benefited us the most in subsequent adoptions, was learning our state referral chain for requesting assistance. In our area, we were to go to our county Case Manager first before requesting services from the state Adoption Assistance Specialist.

 

What were some of the things you learned from parenting your biological children that helped parent your adopted children?

First was realizing there was a developmental difference between typical children and special needs children. Once the differences were identified, it was a matter of determining whether to seek advice or accept the condition and adapt from there. 

Daniel, our fourth biological child, had some special needs so parenting him provided a bit of a transition gateway for our adoptive special needs parenting skills. Daniel was dyslexic and hyperactive. Sometimes his difficulties were too much for others to handle. Because of his struggles, we often had friends and family ask whether we were going to bring him with us when we came to visit. Daniel took special needs classes in high school and Margie did most of his reading to accommodate his Dyslexia.

 

“…be ready to acquire ‘new’ skills for yourself. 

 

What were some new parenting strategies you had to learn after adopting children with special needs?

When requesting services or equipment, we learned we needed to share the worst incident instead of the best-case scenario for that child. Also, we learned not to assume that we would always be available to provide the service or help and to also build in requests for helpers. 

We also learned to hire PCAs (Private Care Assistants) as teens who came from large families. In general, these youth were already trained through regular family life to care for their siblings, so all we had to do was additional care training that met our child’s specific needs.

Another strategy we learned was to fully understand what your school district does and doesn’t provide. Two of our children were able to receive in-home services from the school district because of the severity of their conditions.

 

How have you managed family life, church, school, extra-curricular activities, and respite time over the years? Do you have any advice for other adoptive families of children with special needs on how to best juggle these demands?

Family Life: We didn’t adopt children older than our birth children, thus we limited the competition. Our adoptive parenting years started as our birth children were starting college and lives outside our home. Full-time help came over a period of years. First, we hired a full-time PCA using a waiver and then eventually were able to add our youngest son on as hired help. When our son left for college, we were able to hire a full-time PCA that stayed with us for thirteen years. She helped to coordinate other PCAs, cover homecare when we needed to assist a child away from home, as well as respite time for us. She left after the deaths of two of our totally disabled children.

Since then we have relied upon young adults from 16-20 years to fill the gap. Plus after the decrease in PCAs and Margie heart attack, the county helped our ability to work with an agency to hire and maintain staff by reclassifying our home as a group foster home. We are the only one in the county. 

Our church and extra-curricular activities center around family members which extended to include PCA youth (16+) and their families. Through the church, stay connected to a larger community as well as develop relationships with families we know well and feel good about hiring to do care in our home. 

Because we had a full-time PCA/agency, we could coordinate yearly getaways for ourselves but for about three years when we were between agencies, we were unable to get any time away.

Advice to parents: It is impossible to duplicate what we have done to the letter. Stay flexible. We learned that we needed to change as our children’s needs changed and as well as determine what appropriate assistance was necessary for us to help each child with specific needs.

When starting this type of journey, a couple needs to assess whether their current family can accept and contribute towards bringing in a new family member. Second, they need to take into consideration this child’s care may be a lifelong commitment and both parents need to be committed to this child, not just one.

Next, you should assess what financial and community support is available to you if you adopt. Any financial support provided to care for a child should only fill the gaps for that child’s care and should not be seen as another source of income. When you put income before the care of a child you are not letting God do his work. First, seek the Kingdom of God, and then everything else will be provided. We found this to be very true. 

 

“…be willing to accept a child saying, “I love you” as meaning “Do you love me?”

 

If a family was interested in adopting a child with special needs, what advice would you want to share with them based on your 30+ years of being adoptive special needs parents?

First, you need to consider your motivation for adoption. If you have a perceived idea of what you want a child to become without understanding all the baggage this child has acquired and will continue to work through in your home, stop. You will be disappointed. Understand that first, the child will educate you by their behavior, life experiences, and what they want (which is not always appropriate). They will lead by showing you what triggers their actions, and you must observe before acting. You will probably need professional help in understanding the underneath behavior and be ready to acquire ‘new’ skills for yourself. 

Children in the foster care system have learned to defend themselves when everyone else in their lives has failed them. You must be willing to struggle with them as well as be their spokesperson because they may not have the words to describe what they are feeling. If they are in trauma, they may take a long time to change, if ever. Also, be willing to accept a child saying, “I love you” as meaning “Do you love me?”

After considering the above questions we then suggest you again consider why you would want to adopt. Here are two reasons we have found provided a stable foundation for us as we have adopted. First, a real desire to be faithful to the child we are adopting no matter what. We may not change the child we adopt. Ultimately God is in charge of change and we must be willing to let God take the lead in this area or be okay if change is not in His plan. Second, we must be able to accept our failures, limitations, and frustrations. Every day we review our day with God and choose to be happy with what the day afforded us. We ask God for guidance, change what we can, and then we are joyful about the journey and the amazing people He has allowed us to share our lives with.

 

 

 

 

 


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